NephCure Walk – Northern VA
The NephCure Foundation is a national nonprofit organization dedicated to supporting research to find better treatment, the cause and a cure for Nephrotic Syndrome and FSGS, two rare but incurable diseases that damage the kidneys. In December 2009, Allie, sister of Pack 159 member Lucas Buermeyer, was diagnosed with FSGS. She is currently on a powerful immunosuppressant drug generally given to transplant patients—along with a regimen of other medications—and has recently made a great deal of progress. However, she is still struggling with the many difficulties associated with this potentially devastating disease and unfortunately relapses are likely.
Please help us find a cure for Allie!
1K Fun Walk or Run
Saturday, September 25, 2010
8:00 AM Registration
8:30 AM Start
Location: Fairfax Corner, Grand Plaza
(between Movie Theater and Coastal Flats)
11900 Palace Way, Fairfax, VA 22030
Pre-register for the Pack 159 Team Online Today! Registration is FREE!
Go to: http://www.firstgiving.com/pack159
To have an accurate record of walk participants, each walker must register with the organization. You do not need to raise funds to walk—families are welcome to make one-time donations after they complete registration.
To register: go to FirstGiving’s website, click on “I want to raise money, too”, then click on “for this non-profit”. Click on “register for an event”, then from the list, find and select the Sept. 25 event. Next, click “Yes, register on-line now” and “continue”, then register as a walker—enter “1”, agree to the terms, then hit continue. You will be asked to enter an email address and contact information (your actual event registration). After filling in the form, you will be directed to a page and can select a team—enter Pack 159. Hit “Confirm” on the last page, and you are done! (On the last page, you don’t need to create a fundraising page). If you would like to donate, after you have registered, you can go back to the first page—“I want to raise money”, and click on “sponsor me now”. All donations will be credited to Pack 159.
For More Information or if you’d like to volunteer, contact: Walk Organizer: Nikki Buermeyer (703-476-2803, curtnik@aol.com) Pack 159 Contacts: Patty Farrell (703-476-0195, ktfarr16@gmail.com) and Jennifer Kyle Herd (703-715-2228, jkyleherd@verizon.net)
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